I put them on the table so the doctor could see them and very soon after saying hello, I said, these are my questions. Clin Exp Otorhinolaryngol. The question is has anyone had these symptoms: burning pain, dizzy, swelling post op 3 weeks ? The tonsillectomy was pure hell! It was another small blow knowing that I had 2 types of thyroid cancer not one. I sound much better now but I do speech therapy constantly to improve strength (I'm a speech path so I knew what I needed to do), dry needling and physical therapy on my neck. Know that this cancer is treatable and you will be ok but do not belittle your diagnosis - it sucks- don't neglect your fears they will eat you up. The surgery before me was running late and the clock just kept getting later and later. If you have to, ask your doctor about using milk of magnesium (get some and keep it on hand). Any suggestions will be greatly appreciated. For me, this was the only appointment at which anyone even discussed paying up front for services. Once there I registered and was sent to the 11th floor where I was placed in a nice looking hospital room. The surgery went well and the next day I was released from the hospital to recover. No chemo or typical radiation but I had pretty major surgery, will need to take meds the rest of my life and LID and RAI was/is no picnic. It has been beyond informative and makes a huge difference knowing there are people out there that understand. Hi to give you a little history, in Feb 2014 I found a nodule on my right side of my thyroid byopsies and scans done I was told it was fine nothing to worry about 1 month later I get a pain on my right side scan done I have a nodule on my right overy the advice given at the time wad to remove the right overy but it was my choice as to whether or not I would opt for both to be removed this was a tough choice as a radical meopause was to follow I was 48 at the time however this is where things get very interesting on the Tuesday before my overy removal I ruptured a ligament in my left ankle this was in June op put off until cast off and I was walking around log story short did op in late August and nodule was gone I was delighted and very relieved and thanked god for my lucky escape I'm self employed and I had never been incompassatated before off I went to take control of my life again my ankle never fully recovers I have a cronic pain in I'm neck with tingling down my right arm visited my GP regulary who's best advice was to have an anti depressent which I refused went to a chiropractor as a last resort she was excellent she saved my soul on the spot she told my I needed an mri and an appointment with a nurosurgen immediately 2 weeks later I meet my nourosurgen and I have a very serious condition since I had rip tured my ligament I had also injured my c5 c6 cervical spine and needed to be operated on straight away but my nourosurgen wanted to know who was looking after my thyroid no one was as they had said it was nothing to worry about saw another surguen mor scans mor byopsies the long and the short of it was I had neck surgery in june 2015 right thyroidectomy September 2015 I had micto papillary carcinoma because it was micro no treatment was deemed necessary I had put on alot of weight and thankfully I started to loose it fast forward six months to frebruary and my husband say that lump is growing again I hadn't even noticed myself more scans more byopsies more doctors I have a new nodule in my left side byopsie was incunclusive Doctor wanted to do surgery in may I refused he suggested July I refused again I couldn't face another Summer like the last 2 surgery done on the first of September no results yet as I'm not seeing my surguen until 5th of October I'm hoping this is a good sign so I had 3 ops in less then a year in the same neck area I'm in alot of pain that's from my disc fusion my thyroid area is just very tender I'm taking eltroxin 75mg calcichew and magnesium daily nows the thing I eat very healthy I'm still putting on weight I have very little energy I can cook a good dinner but that is about all I have no interest in work or am I even thinking of going back I have developed a pain in my back teeth very annoying I have a pain in my tight hip (where it all started) and now I'm afraid I may have another nodule on my overy I'm afraid to visit my GP my question is this they are fairly sure these nodules are estrogen fueled but they won't do anything to supress it and this has me worried are they going to do more treatment I don't know I think I would prefer if they did because knowing my luck I will get another nodule on the remaining tissue anyone have any ideas That's not what happened. 2 days for thyrogen shots then one day for RAI. RAI was determined to be unnecessary, though I see my oncologist every 3 months (had one scare where some of my lymph nodes blew up necessitating a CAT scan last year), my endocrinologist every 6 months, and have my neck ultrasounded every 6 months. I was set up with an appointment the Friday before my Tuesday surgery to meet with the hospital for pre-op which included the anesthesiology department physician's assistant, blood work, a urine sample, a chest x-ray, height, weight, EKG and maybe a few test I'm not remembering right now. As of august I am no longer seeing mental health, they think Im normal, and I am feeling a lot better. But, the pain I had last night was sharp. 5) Biopsy report came back showing 2cm+ Papillary - w/ follicular variant, and Lymphocascular invasion, but completely contained in Thyroid. Wednesday and Thursday I continued to improve. At right about that time he came in with a transfer team and a shot of midazolam. On April 19th I started on the low iodine diet and stopped taking Cytomel in preparation for Radioactive Iodine treatment. Not sure what my TSH read at those doses, but I see my oncologist in a few weeks and am requesting a copy of my medical records should be able to figure out what my levels were with each by comparing them to the dates of prescriptions. My surgeon has me taking 500mg calcium with vit.D along with Tums for my parathyroids (they were left intact during the surgery, but my doctor put me on the calcium as a precaution). I have been drinking a lot more water because of the dry mouth condition and always wake up with an extremely dry mouth. I had to drive to Denver three days in a row. I also felt myself getting hungry which was a good sign. Has anyone else had this problem? Sounded perfectly reasonable to me. The biopsy of the left thyroid nodule was rated as Bethesda category IV (follicular neoplasm), and the lymph node was consistent with metastatic papillary thyroid cancer. But the order of operations has gone like this and I wish I knew all this stuff before (FYI I am a 37yo American but in Manila Philippines so am very frustrated/worried about processes or lack there of): 30 Nov 2011 Official Retirement from Navy. In any event, we went to the store when I got home and stocked up on ice cream, yogurt and pudding. Reprinted with permission. My surgeon wouldn't commit to either putting in or not putting in a JP drain prior to surgery, but he did say he doesn't use them as often as other surgeons. Both surgeons recommended almost the exact same treatment plan. Oh and the medical bills might be the end of us financially. Below are general instructions for patients who have had thyroid or parathyroid surgery. Can it grow that fast from elevated TSH levels? By really looked into it I mean I called lots of doctors looking for one to do the robot assisted surgery. TeamInspire It's hard to raise my head and I couldn't look up at the ceiling. My voice was also severely affected but it got better with exercising. I go back to my Drs office for results next week and am doing my best trying to stay away from my sweet family and dog. I still have poor vocal range and intensity. 4) Went through with Surgery on July 29th, was a mess I guess as right lobe fused to esophogus and wrapped around windpipe areas. On the Aug 18 I had my 2nd Stapendectomy surgery with Dr C2. You can expect to have some pain after surgery. Meeting went good although it was just me S. Cheryl and the leader of the group this time normally they have a few others. Numb feeling on the front side of my neck between my chin and incision. Post-op is a bit of a blur. Everyone was extremely professional, everyone was very nice. I contacted the surgeon-he blamed the post op Percocet. There's just so many nerves and glands and other structures in your neck that you don't want to mess with, don't make the mistake of blindly putting your future in some random doctor's hands. The best reason I can come up with is that water and juice rush down the throat hitting the sore spot quickly. However, since my surgery, I've been hit with insomnia. I also received some stitches on nerves inside. Also, through the night I drank some more water using the chin to my chest trick to get the water down. We called our local ent (who did the thyroidectomy in 2013) he was out of the office & since the ENT who did the most recent surgery of his lymph nodes is in Cleveland ( 3 hour drive for us ) so I took him over the the emergency room. I had to make a decision. Typically thyroidectomies take about 3hours and you come out with a cute little 3in scar. Keep in mind that a good history and physical examination are beneficial for early diagnosis and education of the patient with this complication. 7 weeks after TT and like 2 weeks after RAI. At 21yo, fairly advanced cancer (luckily only papillary w/ follicular variant) was about the last thing I was expecting, so that was definitely a fun little discovery. The stretching exercise group learned the neck stretching exercises immediately after total thyroidectomy. They'd said I might not remember being wheeled into surgery, but I remember the trip into the OR and looking around the OR. Those are the same medications they give you for a colonoscopy. Given that I had what my doctor (the top thyroid surgeon in the region who does hundreds of surgeries a year) said was the biggest surgery he had done all year, my recovery was much worse than what most peoples should be. I'm sleeping over 14 hours+ a day, I'm shaky, chills off and on, but no fever. At about 6:45pm the anesthesiologist came in, asked a few questions and said he was hoping for my surgery to start at around 7pm. The surgery went well but do to low calcium and magnesium levels (parathyroid(s) where not fully functioning) I was kept in the hospital for 2 days to ensure my parathyroids were maintaining proper levels. I read that thyroid cancer has a 95% cure rate and 30% reoccurrence (is this true?). Don't stay in a hotel if you can avoid it after RAI (it really is dangerous to others) and if you do, don't post it anywhere or you will be crucified (however if you search, there are really good posts about how to do it as safely as possible). Swallowing discomfort. Cheers. Her symptoms were a hypoesthesia around the right neck scar, and a continuous and spiking pain with allodynia in the right neck and arm. My experience with thyroid cancer- so far: Again - very minor things that don't inhibit me from doing what needs to get done. I had my friend, that is a PT, feel my neck and she said yes you have something in there and you need to go see your dr asap. I had a softball size tumor and didn't even know it was there, it makes me angry that I didn't, after It was pointed out to me I could actually palm the mass as I swallowed. Bookshelf It is estimated that 70% of patients with Horners syndrome after thyroidectomy will have permanent damage or incomplete recovery while the remaining 30% will completely recover between 5 to 15 months after surgery. 2 Mar 2011 1 year from being told I have cancer. Care and Management of Voice Change in Thyroid Surgery: Korean Society of Laryngology, Phoniatrics and Logopedics Clinical Practice Guideline. I know the levels that I'm supposed to maintain at are different from those of normal people with a thyroid and no cancer history. My recovery is going well, however, I'm having tingling in my fingers & hands. My voice sounded horrible for about 6 weeks and I have weakness on one side of my vocal chords. The Impact of Post-Thyroidectomy Neck Stretching Exercises on Neck Discomfort, Pressure Symptoms, Voice and Quality of Life: A Randomized Controlled Trial. I was told that I couldn't do radioactive iodine (rai) for six months due to my ct scan (cat scans use iodine for imaging and RAI would not be as effective). The site is secure. This was my 2nd bout of hiccups from surgery again they lasted about 10 days. After hours emergency: A/Professor Miller's mobile - emergency only please. So hopefully this helps calm down some of you starting to go through this process because its not all bad experiences (and this is coming from someone who has had their cancer spread described as "Chernobyl-like"). I was also informed when they removed my thyroid there was a parathyroid gland in each of the thyroid sections removed (so I have 2 of 4 parathyroid glands removed as well) this is probably why I had minor problems with calcium and magnesium levels. Is RAI 90MCI enough to take out 2 lymphnodes? Please help me understand! Follow-up of the patients with the scales applied in the experimental group were also performed to the control group at the same intervals. On the 9th of September I had an appointment with my PCM and he confirmed I still had a major ear infection and gave me different antibiotics for it. Patients who undergo thyroid surgery frequently suffer from unpleasant symptoms such as a stretching, choking, or pressing feeling or discomfort in the neck for a long time. Growths: Masses, including tumors, cysts and bone spurs, can put pressure on the nerves in your neck, causing pain. A 27-year-old woman with no significant medical history presented to our institution for management of her thyroid cancer. 2010 Oct;(194):1-764. A few days later I realized that I had not heard things like birdsong in 3+ years. 2) Did anyone else get post RAI Ultrasounds and show remnant tissue in thyroid bed? I know part of it is because of my cats needing cuddles at 3 am, but I was wondering if anyone else had this problem. Monday the 22nd at Madigan they gave me valium to go with the oxycoton didnt really help the pain I just didnt care about ANYTHING Tuesday night I started the antibiotics (1 day early) and by Friday the 27th the pain was back to where I only needed Tylenol. Ask to be checked with a Geiger counter to determine when you are safe to be around your family. On May 17th I went to Bangor clinic for a update with my primary care provider and we discussed things like my recovery plan and basically made sure that they had a full picture of my current health. Muscle cramps. The morning after your surgery, you can take a shower and allow water and mild soap to run over your wound. ; Hemithyroidectomy or thyroid lobectomy: This involves the removal of one of the two lobes of the thyroid gland. If anyone has / had the same issues, any info on them would be great. Korean Society of Laryngology, Phoniatrics and Logopedics Guideline Task Force; Ryu CH, Lee SJ, Cho JG, Choi IJ, Choi YS, Hong YT, Jung SY, Kim JW, Lee DY, Lee DK, Lee G, Lee SJ, Lee YC, Lee YS, Nam IC, Park KN, Park YM, Sung ES, Son HY, Seo IH, Lee BJ, Lim JY. Again, my surgeon only says it's normal with minimal to no explanation whatsoever. On Thursday night my mom made a very basic Thanksgiving dinner and I was able to eat all of it with no problems whatsoever. Minor differences in their approach. The other doctor did about 45 thyroidectomies per year. Within 2 hours I got up to use the restroom and asked if I could take a couple laps around the ICU, which the nurse allowed me to do by attaching a portable monitor to a wheelchair that I pushed.